Searching for motivation

Finding motivation to write the last month has been impossible.

At work, late May deadlines creep closer and closer. Days in the office lengthen. Stress increases. Dates on my Outlook calendar disappear. I pine for a vacation that seems to never come.

I want—no, I need—time to be alone, to think, to forget everyone else’s problems and focus on my own. I want to feel truly human, to remind myself life has to be more than just a series of succeeding weeks at a desk and weekends at a grocery store or a bar.

My suppressed immune system spent the past two weeks battling a virus. I had to down cocktails of cold medications to persevere through back-to-back meetings, only to come home and crash on the couch to reruns of House, MD and made-for-Netflix British teen dramas.

Motivation in pill and liquid form

Meanwhile, my body and brain are still learning what to do on less than 10 milligrams of prednisone. Systemic corticosteroids make me feel elated, energetic, invincible. For almost a year, I have depended on them, in part, to counteract the fatigue caused by an overactive immune system. As my doctors continue to taper me off, I wonder if I have even been myself the past year. Were the steroids the only reason I was able to maintain a job, a side gig, a new novel, a workout regime, and a blog?

This returning fatigue has left me reaching for lattes, London Fogs, and liquid energizers as I hope that maybe, just maybe I’ll find an evening or a lunch break to pound out a paragraph or three. Hell, this lame Saturday afternoon keyboard confessional was brought to you by Monster Energy Ultra Violet.

Writer’s block: a psychologist’s view

When I work with university faculty, I preach against procrastination and what psychologist Paul Silva in How to Write a Lot calls “specious barriers,” the excuses we make for ourselves for not writing: I need more time. I need to do more research. I need a new computer. I need inspiration.

Paul Silva's "How to Write a Lot" is for anyone making excuses for themselves on why they can't find the time or motivation to write.
Paul Silva’s How to Write a Lot is for anyone making excuses for themselves on why they can’t find the time or motivation to write. He prescribes schedules, recommends goals, and helps writers remove what he calls “specious barriers,” or excuses we make for not writing.

Silva’s solutions are simple: Schedule the time. Do the research. Buy a new computer.

He forgives the novelists and poets among us—our penchant for plumbing the depths of the human soul, our unspoken goal “to move readers to tears.” He is even so kind as to compare us to “landscape artists and portrait painters.”

I have never been that kind to myself. Writer’s block may be the curse of all who seek to win with words, but I’ve never believed in curses.

Lacking inspiration? Find it, I say.

Need motivation? Brew a cup of afternoon joe.

But then again, maybe I am too hard on myself. Cannot inspiration be found in salacious British high-school scandals?

Corticosteroids, colds, and mental health

Tapering down my corticosteroids and battling a run-of-the-mill cold while on immunosuppressants have left me exhausted this week.

Corticosteroids like prednisone are a first-line treatment for dermatomyositis and other autoimmune diseases but they can have serious side effects, especially when used over multiple months.
Corticosteroids like prednisone are a first-line treatment for dermatomyositis and other autoimmune diseases but they can have serious side effects, especially when used over multiple months.

Side effects of corticosteroids

No one should be on moderate to high doses prednisone or any corticosteroid for forever. Long-term corticosteroid use has several side effects: cataracts, bone loss, easy bruising, muscle weakness, weight gain, high blood sugar, psychosis, infection, and heart disease. People with healthy immune systems should not use them more than a couple weeks. Not unlike heroin detoxification, anyone who does use them for more than a few weeks has to taper down to lower and lower doses until you ween yourself off them.

Interestingly, even short-term steroid use has positive temporary side effects: namely, steroid euphoria. When you take the drug, you feel happy, positive, like you can conquer the world.

You can also have surpluses of energy, functioning on five to six hours of sleep just fine. I actually started this blog last July, during one of my steroid highs.

Corticosteroids screw with my mental health

As you taper down, each subsequent smaller dose deprives you of that drug-induced happiness. Much like someone weening themselves off opiates, you become physically depressed.

For almost nine months, my doctors have been varying doses of corticosteroids, trying to ween me off, only to put me back on moderate doses when my other medications fail.

This has been a mental and physical health nightmare, causing me to feel, at times, bipolar. One month, I get 30 or 40 mg of prednisone each day. The next, I taper down to 20 mg. At one point, I was on only 12.5 mg per day. Lately, I am down to 17.5 mg, leaving me feeling depressed.

Battling a common cold while suppressing my immune system

I also had a cold this week, my second of 2019 (the last ruined my New Year and my vacation). Just the usual symptoms: nasal congestion, ear and headaches, dehydration, fatigue.

Unlike people with healthy immune systems, my body seems to slow down more when I get sick. Several of my coworkers were still functioning the whole week while infected with the same virus, while I had to take a day and a half off work. Tuesday, I did nothing but watch YouTube videos of chef knife reviews. I have not been to the gym in a week. I ate junk food trying to make myself feel better.

Positive note: Even if immunosuppressants like methotrexate, azathioprine, and hydroxychloroquine leave me down for the count when a cold strikes, prednisone is like Aleve (naproxen) or Advil (ibuprofen) on steroids (pun intended). I barely notice nasal congestion or ear aches after I take prednisone in the morning. At night, however, I struggled to breathe normally.

I feel much better today, but now I have a new concern: a new, unexplained allergic reaction.